ACCESSIBILITY IS A BEAUTIFUL THING.
HOPE HOUSE REGISTRY
In building the Hope House,
we do for one what we wish to do for all:
make a space where people with special needs can enjoy basic freedoms that lead to independence, like washing hands, getting into the shower or simply going outside to play. Your giving goes to more than just a well-built house (and trust us, it was made to last!) You are helping build a future of accessibility for everyone who will live here for years and years to come.
WE'VE BUILT A HOUSE, NOW LET'S MAKE A HOME
The Hope House has been under construction through three years of mud and snow, but spring is coming, the house is built, and now we need your help finishing strong! Itemized here are some of our remaining needs in a registry style. All your tax-deductible donations will go to Living Light Church which makes it possible for families to live here without tax expense. Keep in mind any donation made through the registry site will go toward overall finishing costs in order of priority rather than the specified item. Thank you for your generosity that has made this dream a reality.
THE FIRST HOPE HOUSE FAMILY.
MEET the reuwers
SIX precious people | FIVE children | FOUR still living | THREE with special needs | TWO in a wheelchair | ONE very tired dishwasher
Mike and Megan Reuwer are no strangers to suffering. Their first baby Evan was born without a skull and died within minutes of birth. In true against-all-odds Reuwer fashion, their next baby Rowan was born promptly on the front seat of the car on the Fourth of July. He’s 10 years old, enjoys good health, and for him it’s all about basketball, drawing, and video games.
Next came Phoenix, the medical marvel. Doctors had never seen an ultrasound as devastating as his and recommended termination. Today he is 8 years old; we are so glad he is here with us. Phoenix has severe spina bifida (his spine jutted out at a right angle from his body when he was born) and he has had countless surgeries, skin grafts and therapies to repair the wound on his back from that defect. In 2015 he underwent an extensive procedure at Children’s in Boston to have rods inserted that would give him increased lung capacity and a better position in his wheelchair. His body initially rejected the rods; the past 3 years have included ongoing trips to Boston for the maintenance of his high-risk “hardware” including expensive, extensive surgeries. Phoenix requires total assistance with transitions from bed and chair, daily enemas, lots of hands-on help with school, play, and physical and occupational therapy. He adores water, his iPad, facetiming his uncle and goofing off with his Papa.
Penelope is 7 years old and will be in 2nd grade in the fall. She was born with tetralogy of fallot, a heart condition that required an open-heart surgery at 6 months old. During an emergency appendectomy, surgeons discovered that she also has several “duplicate” organs. Her case is a real head-scratcher. She has many symptoms and specialists are still trying to diagnose her fully. In April 2016 she had severe pain that resulted in the removal of 10 inches of small intestines. Recovery is slow and steady. Penelope loves princesses, pink, purple, silver and gold. And strawberries.
The baby of the family is Genevieve – but don’t call her a baby. You can, however, call her Veve. She is teeny but fierce. Born with both spina bifida and a heart defect, hypoplastic left heart syndrome, requiring multiple (also open-heart) surgeries. She works hard in therapy and is striving to stand on her own, although at age 5 she gets around mainly in a wheelchair. She has her own set of physical challenges and limitations and needs to be catheterized multiple times a day. Veve loves sunglasses, snuggling, singing and pink.
GIVE YOUR SUPPORT
Questions, comments or special gifts?
Get in touch today, we’re happy to help channel your support to this beautiful project.
Living Light Church reserves the right to make changes to items donated
due to cost, availability of items, and other factors.
Thank you for your understanding and support.